Spina Bifida Awareness: Understanding, Prevention, and Support

– Spina bifida is a condition that affects the spine and is usually apparent at birth.
– It is a type of neural tube defect (NTD).
– Spina bifida can happen anywhere along the spine if the neural tube does not close all the way.
– Spina bifida might cause physical and intellectual disabilities that range from mild to severe.
– The three most common types of spina bifida are:
1. Myelomeningocele
2. Meningocele
3. Spina Bifida Occulta
– Spina bifida can be diagnosed during pregnancy through screening tests like AFP (alpha-fetoprotein) blood test and ultrasound.
– Spina bifida can sometimes be diagnosed during pregnancy through tests such as blood tests and amniocentesis which measure the levels of alpha-fetoprotein (AFP) in the mother’s blood or amniotic fluid.
– In some cases, spina bifida can only be diagnosed after the baby is born through physical examination or imaging scans such as X-rays, MRIs, or CT scans.
– Treatment for spina bifida varies depending on the severity of the condition, with more serious cases requiring more treatments.
– The causes of spina bifida are still not fully understood, but genetics and environmental factors are believed to play a role.
– There are ways for women to reduce the risk of having a baby with spina bifida, such as taking folic acid supplements, managing medical conditions before pregnancy, and avoiding overheating the body.
– Taking folic acid can help reduce the risk of having a pregnancy affected by spina bifida.
– All pregnancies in the United States are unplanned.
– It is advised that all women who can become pregnant take 400 mcg of folic acid daily.
– Spina bifida can vary in severity.
– Some people with spina bifida may have little to no disability.
– Others may experience limitations in their movement and functionality.
– Severe cases of spina bifida can result in paralysis or an inability to walk or move certain body parts.
– With appropriate care, most individuals affected by spina bifida can lead full and productive lives.
– The article also mentions the availability of information on living with spina bifida at different ages.

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